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  • FAMILIES & CAREGIVERS
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      Kayleigh, Nick, and Elise NIH Natural History Study Participants

      We came home from the NIH study empowered with knowledge, tests, and research which essentially saved our daughter's vision.

      Kayleigh & Nick
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      SLOS RESEARCH
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Main Menu
Menu
  • ABOUT US
      Who We Are
      • Our History
      • Our Leadership
      • Our Commitment
      • Our Member Families
      • Our History
      • Our Leadership
      • Our Commitment
      • Our Member Families
      Our Mission
      • Family Support
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      • Clinics & Treatment Programs
      SLOS feet graphic
  • FAMILIES & CAREGIVERS
      Living with SLOS
      • Disease Information
      • To the Newly Diagnosed
      • Managing SLOS
      • SLOS Growth Charts
      • Treatments
      • Clinics & Treatment Programs
      • Internet Support Resources
      • Disease Information
      • To the Newly Diagnosed
      • Managing SLOS
      • SLOS Growth Charts
      • Treatments
      • Clinics & Treatment Programs
      • Internet Support Resources
      Medical professional line graphic
      Support Resources
      • Early Intervention
      • Facebook Parent Support Group
      • Extended Family & Friends Support
      • Family Mentor Request
      • SLOS Conferences
      • Germany SLO Association
      • Nutrition
      • Cholesterol Supplementation
      • Suggested Readings & Products
      • Early Intervention
      • Facebook Parent Support Group
      • Extended Family & Friends Support
      • Family Mentor Request
      • SLOS Conferences
      • Germany SLO Association
      • Nutrition
      • Cholesterol Supplementation
      • Suggested Readings & Products
      Education Resources
      • SLOF Videos
      • ●  SLOS Informational Guide   ●
      • SLOS Growth Charts
      • SLOF Library of Information
      • SLOS Conferences
      • SLOF Videos
      • ●  SLOS Informational Guide   ●
      • SLOS Growth Charts
      • SLOF Library of Information
      • SLOS Conferences
      Loss Resources
      • To Families Who Know Loss
      • Facebook Parent Loss Group
      • To Families Who Know Loss
      • Facebook Parent Loss Group
      Line art of woman using laptop
      Kayleigh, Nick, and Elise NIH Natural History Study Participants

      We came home from the NIH study empowered with knowledge, tests, and research which essentially saved our daughter's vision.

      Kayleigh & Nick
  • RESEARCH & MEDICAL PROFESSIONALS
      National Institutes of Health building sign
      young male patient with physician
      SLOS RESEARCH
      • Research Grant Program
      • Who We Fund
      • Apply for a SLOS Grant
      • SLOS Conference Scientific Videos
      • Research Grant Program
      • Who We Fund
      • Apply for a SLOS Grant
      • SLOS Conference Scientific Videos
      young male patient with Dr. Forbes D. Porter
  • HOW TO HELP
      Ways to Give
      • Donate Online • Network for Good
      • Donate Online • Giving Hearts Day
      • Donate by Mail
      • Gifts of Stock & Appreciated Securities
      • Tribute Gifts
      • Company Matching Gifts
      • Endowments
      • Donate Online • Network for Good
      • Donate Online • Giving Hearts Day
      • Donate by Mail
      • Gifts of Stock & Appreciated Securities
      • Tribute Gifts
      • Company Matching Gifts
      • Endowments
      Giving Hearts Day style Smith-Lemli-Opitz Foundation
      Fundraise
      • Fundraising Events
      • Partner with SLOF
      • Host a Fundraiser
      • Fundraising Events
      • Partner with SLOF
      • Host a Fundraiser
      Giving Hearts Day logo
      Volunteer
      • Volunteer Opportunities
      • Volunteer Application
      • Host a Fundraiser
      • Volunteer Opportunities
      • Volunteer Application
      • Host a Fundraiser
      Advocate
      • Take Action
      • Legacy Donation
      • Take Action
      • Legacy Donation
      Emma Muncy in her wheelchair
DONATE
BE A MEMBER

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Posts

  • Ellie Guay
    Endowed Fund
    for Smith-Lemli-Opitz Syndrome
  • SLOS Online Webinar
  • Giving Hearts Day 2027
  • Remembering Gretchen Noah
  • Elias Article Released
  • Celebrating Cliona
  • Cliona F. Cady
    Endowed Fund
    for Smith-Lemli-Opitz Syndrome
  • Hope A. Held
    Endowed Fund
    for Smith-Lemli-Opitz Syndrome
  • Jukie Jones Duren Endowment
  • A SLO Family Story Released
  • John Marius Opitz 1935-2023
  • Rare Disease Day
  • New Giving Milestones!
  • Jukie Jones Duren Fundraiser
  • Carson J. Gallagher
    Endowed Fund
    for Smith-Lemli-Opitz Syndrome
  • Carson’s Canvas Creations
  • Jackson “Jukie” Jones Duren
    Endowed Fund
    for Smith-Lemli-Opitz Syndrome
  • Mark C. Noah
    Endowed Fund
    for Smith-Lemli-Opitz Syndrome
  • James Shaves for SLOS
  • Jukie Jones Duren Endowment
  • A Lasting Legacy
  • 2021 Golf Tournament
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The Smith-Lemli-Opitz Foundation does not provide medical advice.  Any content provided on the Smith-Lemli-Opitz Foundation website is for informational purposes only and is not a substitute for professional medical advice. Please consult your personal medical professional for any questions you may have about any medical condition. Smith-Lemli-Opitz Foundation does not endorse or recommend any particular provider, testing, product, procedures, opinion or other information which may be mentioned on this website.

The Smith-Lemli-Opitz Foundation is a registered charitable organization. Donations are tax-exempt under IRS 501(c)(3), ID #23-2635206.

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