The webinar aims to provide information about SLOS and increase knowledge and understanding of SLOS symptoms from a holistic perspective.
With deep sadness, the Smith-Lemli-Opitz Foundation announces the passing of Gretchen Noah, an eternal part of the soul of the Foundation.
Dr. Ellen Elias’ research on cholesterol biosynthesis and metabolism causing medical complexity in patients with SLOS is now online.
The book “I Want to Survive” tells the journey of a family as they raise a child with a rare genetic disorder called Smith-Lemli-Opitz.
With deep sadness, the Smith-Lemli-Opitz Foundation announces the passing of Dr. John Marius Opitz, who co-discovered SLOS.
