
John Marius Opitz 1935-2023
With deep sadness, the Smith-Lemli-Opitz Foundation announces the passing of Dr. John Marius Opitz, who co-discovered SLOS.
We came home from the NIH study empowered with knowledge, tests, and research which essentially saved our daughter's vision.
Kayleigh & Nick

With deep sadness, the Smith-Lemli-Opitz Foundation announces the passing of Dr. John Marius Opitz, who co-discovered SLOS.

Happy Rare Disease Day! The Beyond the Diagnosis exhibit at the EVERSANA National Meeting featured one of our own.

New Milestones Reached in Fundraising
during Giving Hearts Day 2024
Thanks to you!

A 2024 endowment fundraiser to provide an eventual annual source of support for the Foundation to help SLOS families.

An endowed fund to provide an eventual annual source of support for the Foundation to help SLOS families.

Funds earned from Carson’s artwork support the Carson Gallagher Endowed Fund to benefit the Smith-Lemli-Opitz Foundation.

An endowed fund to provide an eventual annual source of support for the Foundation to help SLOS families.

An endowed fund to provide an eventual annual source of support for the Foundation to help SLOS families.

James raised over $1,300 for the SLOS Foundation with his hair shave, beating his goal of raising $1,000 for the charity.

An endowment fundraiser to provide an eventual annual source of support for the Foundation to help SLOS families.