An endowed fund to provide an eventual annual source of support for the Foundation to help SLOS families.
The webinar aims to provide information about SLOS and increase knowledge and understanding of SLOS symptoms from a holistic perspective.
Giving Hearts Day is February 11th, 2027.
Support us today or during this incredible
giving day of generosity and support!
With deep sadness, the Smith-Lemli-Opitz Foundation announces the passing of Gretchen Noah, an eternal part of the soul of the Foundation.
Dr. Ellen Elias’ research on cholesterol biosynthesis and metabolism causing medical complexity in patients with SLOS is now online.
Celebrating Cliona’s birth inspired her family to establish an endowed fund to provide support for SLOS families through the Foundation.
An endowed fund to provide an eventual annual source of support for the Foundation to help SLOS families.
An endowed fund to provide an eventual annual source of support for the Foundation to help SLOS families.
A 2025 endowment fundraiser to provide an eventual annual source of support for the Foundation to help SLOS families.
The book “I Want to Survive” tells the journey of a family as they raise a child with a rare genetic disorder called Smith-Lemli-Opitz.
