Growth and development of children with SLOS can be delayed and affected by the spectrum of disease severity, with decreased weight and final height.

Medical specialists have developed growth charts to improve the care of individuals with SLOS.

With exception to the extremes of growth, there is limited evidence to suggest that failure to attain optimal growth, in mild to moderate degrees, leads to damaging consequences for the individual. Just like with the normal growth curves, a crossing of percentiles can be a sign of an intercurrent illness.

Many of our families download and bring the SLOS growth charts to their pediatricians to help them understand the decreased growth of our children.