• P.O. Box 10598
  • Fargo, North Dakota 58106-0598
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The Smith-Lemli-Opitz Foundation network is here to support you as you navigate your journey with SLOS.

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Be notified with new information about SLOs and its treatments.

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Those who know what you are going through will provide valuable support.

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Lifetime membership to resources and relationships to improve your life with SLOs.

Membership Registration

Upon submitting your registration information, you will receive a response via email from the Smith-Lemli-Opitz Foundation approving your membership. You will receive an annual email to confirm your information and lifetime registration.

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We work worldwide to improve the quality of life for people with Smith-Lemli-Opitz syndrome through educating and supporting families, spreading SLOS awareness, and funding research into the disorder.

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The Smith-Lemli-Opitz Foundation does not provide medical advice.  Any content provided on the Smith-Lemli-Opitz Foundation website is for informational purposes only and is not a substitute for professional medical advice. Please consult your personal medical professional for any questions you may have about any medical condition. Smith-Lemli-Opitz Foundation does not endorse or recommend any particular provider, testing, product, procedures, opinion or other information which may be mentioned on this website.

The Smith-Lemli-Opitz Foundation is a registered charitable organization. Donations are tax-exempt under IRS 501(c)(3), ID #23-2635206.

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