Generous gifts of time, resources, and talent
Volunteer
Our mission is fulfilled through the incredible and selfless generosity of people.
Volunteers
Our most valuable assets are people
Volunteers, which include the organization’s own Officers and Board of Directors, are heavily relied upon and are our most valuable asset. For without the extreme generosity of your time, resources, and talents, we would not be where we are today.
The Smith-Lemli-Opitz Foundation extends its sincere thanks and gratitude for your charity, hard work, and unwavering support of its mission.
The SLO Foundation also recognizes the desire of those who, as volunteers, want to do as much as possible and become more involved to further the cause in searching for treatments and a cure. For this, we greatly appreciate your selfless contributions and dedication.
To volunteer, please complete and submit the Volunteer Application below.
We have time, resource, & talent opportunities
Review our volunteer opportunities in the tabs below.
To volunteer, complete and submit the Volunteer Application.
Be part of a Smith-Lemli-Opitz Foundation Committee that investigates support programs by state and reports back to the Foundation officers.
Goal: Committee of eight individuals who enjoy researching and finding funding and networking assets for the Smith-Lemli-Opitz Foundation
Getting the word out!
The world is a big place. Join our committee in charge of raising awareness of SLOs.
You might be the reason a family finds their diagnosis.
Volunteer to be an "ambassador" who shares mission-related information about the Smith-Lemli-Opitz Foundation and awareness of SLO through social media and other media channels.
Goal: Two or more articulate and SLO-aware individuals with the influence, energy, and enthusiasm to write, design, and/or present to the public through various media channels
Research studies are an important part of finding treatments and a cure for SLOs!
Promote research studies and connect SLO families with ongoing research studies that may be a good fit for them.
Goal: Three or more individuals who work with the Medical and Scientific Advisory Board and SLO Foundation Family Members and secure research study participants.
Become a pledge partner who pledges or secures donors to pledge funds given on Giving Hearts Day held annually in February.
Goal: 100+ pledges for Giving Hearts Day annually
If you do excellent work keeping details and people in order, this position is for you.
Goal: An individual to keep a calendar of Foundation events and tasks and coordinate volunteers to engage in and complete those activities.
Opportunities
Host a gathering to introduce people to the Smith-Lemli-Opitz Foundation and gain "friends of SLOF" to support our mission with gifts of time, talent, or treasure.
OR
Gather people for an in-person or online event that raises money for the Smith-Lemli-Opitz Foundation.
Whether it’s an online fundraiser, a birthday bash, jeans day at the office, or a golf tournament, we can answer your questions to make it a success!
Goal: as many hosts and friend-raiser or fundraiser events as possible annually.
Assist during a gathering to introduce people to the Smith-Lemli-Opitz Foundation and gain "friends of SLOF" to support our mission with gifts of time, talent, or treasure.
OR
Assist at an in-person or online event that raises money for the Smith-Lemli-Opitz Foundation.
Whether it’s an online fundraiser, a birthday bash, jeans day at the office, or a golf tournament, we can help get you started!
Goal: as many assistants and friend-raiser or fundraiser events as possible annually
Communicate our thanks to donors and volunteers by calling them or sending thank you cards and letters to them.
Goal: Ten or more individuals to complete these gratitude tasks throughout each year
Are you an experienced parent with a heart for helping new families? This is the perfect opportunity to put your experience to work!
Help newly diagnosed SLO families by giving your time to listen, assist, and advise them as they navigate a life affected by Smith-Lemli-Opitz syndrome.
If you do excellent work keeping details and people in order, this position is for you.
Goal: An individual to help coordinate Family Mentors and aid in connecting them with SLO families who need mentor support. In addition, assist the Foundation Director of Family Support and Communication with related tasks.
Help with the various tasks needed to prepare for and facilitate the biannual SLOF Family & Scientific Medical Conference.
We are looking for volunteers to call and send welcome cards to families whose children are newly diagnosed with Smith-Lemli-Opitz syndrome. We also need help assembling and sending welcome packets to these families.
Essential Duties
- assemble the packet (SLOS brochure, stickers, cholesterol recipe book, physician listing, FAQs, Letter from the Board of Directors)
- writing a personalized welcome note to the family, and
- mailing the package
Skills
Caring for people
Requirements
A cheerful, helpful heart and the desire to make a difference in the lives of families at the point of diagnosis - when they need information and support the most.
Date & Time
This is an ongoing event!
Great for
Individuals and groups wanting to help
Essential Duties
- attend meetings a few times each year to advise the SLOF on maximizing participation, advertising, and strategy for Giving Hearts Day.
- participate in the fun of Giving Hearts Day by helping with stewardship calls when donors make a gift. Your voice will say "thank you" on behalf of the children and adults struggling with Smith-Lemli-Opitz syndrome.
Skills
Caring for people
Date & Time
This is an ongoing event!
Great for
Individuals
Essential Duties
- attend meetings a few times each year to advise the SLOF on maximizing participation, advertising, and strategy for Giving Hearts Day.
- participate in the fun of Giving Hearts Day by helping with stewardship calls when donors make a gift. Your voice will say, "thank you" on behalf of the children and adults struggling with Smith-Lemli-Opitz syndrome.
Skills
Administrative Support/Clerical
Date & Time
This is an ongoing event!
Great for
Individuals
Volunteer Application
Complete and submit the information requested below.
Someone from our leadership team will connect with you soon.
Thank you for considering Smith-Lemli-Opitz Foundation
to give of your time, resources, and talents!
