Jukie Jones Duren was born with the rare genetic syndrome called Smith-Lemli-Opitz syndrome. In 2023, we established the Jukie Jones Duren endowment to support the Smith-Lemli-Opitz Foundation, a small but mighty organization dedicated to helping SLO families worldwide.

With your help, we have made significant progress in reaching our $50,000 goal for this endowment. This goal inspires us because this endowment will support families affected by Smith-Lemli-Opitz syndrome. As the first contact for parents of newly diagnosed children (often newborns in the NICU), Kate knows just how overwhelmed affected families typically feel by the diagnosis and daunted by the challenges of facing a devastating syndrome with a high mortality rate.

All donations are tax-deductible (Fed ID# 23-2635206) and will bring us closer to our $50,000 goal. Please mention the Jukie endowment when you give.

If Jukie cared about recognition, he would love that this endowment bears his name. I think he would mostly care that so many other affected children and their families will benefit from your donation and the amazing work of this non-profit organization.

One can donate via the Smith-Lemli-Opitz Foundation website giving page. If you use the website giving page, please include Jukie’s name on the donation form or interface. The Foundation leadership knows just who he is – you can find pictures of Jukie a few times on the Foundation website – and they will know just how to direct the funds. Thank you!

With love and appreciation,

Andy Jones and Kate Duren
The parents of Jukie!