Tips and Tricks

Synthetic Cholesterol dosing:

• The best way to measure out the cholesterol (which is to be kept refrigerated) is to remove the bottle from the cold for a minium of 15 minutes, no more than 30 minutes.
• Turn/flip the bottle 10-20 times to mix the contents - do not shake as it creates air bubbles which can skew the measurement.
• Fill enough oral syringes for a week each with the proper dose for 1 administration and place these in some sort of container.
• Place both the bottle and the syringes back into the refrigerator.

Synthetic Cholesterol administration through g-tube (MIC-KEY variety):

• Move the clamp to the bottom of a bolus tube and cut the tube about 1/4 inch longer than the clamp.
• Use an oral syringe to administer the cholesterol and follow by warm water.
• The syringe tip should fit right into the tubing.

Keeping g-tube area clean and dry:

• Cut an always maxipad into squares and in each square, cut a slit to the center and make a circle in the center.
• Keeping the protective backing on, turn the square upside down and slide it around the button.
• The wicking of the pad keeps the skin dry.
• Use UdderBalm or BagBalm to keep the area rash free and protect it from leakage.

Behavior modification:
Take a white board or laminated paper source and mark it with four circles as if it had been divided into 4 squares with a circle in each. Each time the child misbehaves, X out one of the circles. If all four circles get crossed out, the child loses a coveted priveledge.

Medical Alert:
Use a dog/cat tag to put medical information on your child by tying the tag onto the child's shoes.

Traveling with Kangaroo Feeding Pumps:
Kangaroo has a "Pumps on loan" program where you can call and arrange for a pump to be delivered to where ever you are staying while traveling to a foreign country. Contact your medical supply company. ADAPTERS DO NOT WORK WITH THE CHARGING BASES! Make sure you have a proper adapter

Guardianship:
It is recommended to obtain guardianship of your child before they turn 18, especially if they cannot care for themselves. You'll also want to set up a Special Needs Trust to protect your child against losing benefits due to gaining your estate.

Mosquito protection:
Pin a Bounce fabric sheet to clothes fill muslin bags with dried sage and hang them in doors and windows

Common Variable Immune disorder:
Lacking the immune response necessary to fight off bacteria and virus'.

Sun Lotions:

• BullFrog suntan lotion
• Coppertone Spectra 3 in the mint green bottle
• Coppertone WaterBabies